P082 UK Cystic Fibrosis Registry data validation programme
نویسندگان
چکیده
منابع مشابه
Data Resource Profile: The UK Cystic Fibrosis Registry
Data Resource Profile: The UK Cystic Fibrosis Registry David Taylor-Robinson,* Olia Archangelidi, Siobhán B Carr, Rebecca Cosgriff, Elaine Gunn, Ruth H Keogh, Amy MacDougall, Simon Newsome, Daniela K Schlüter, Sanja Stanojevic and Diana Bilton; on behalf of the CF-EpinNet collaboration Department of Public Health and Policy, University of Liverpool, Liverpool, UK, National Heart and Lung Instit...
متن کاملCystic fibrosis mortality: registry data of cystic fibrosis.
BACKGROUND The Cystic Fibrosis Foundation has been collecting mortality and other data on cystic fibrosis patients from over 100 U.S. clinical centers since 1966, and publishes annual reports of the data. Cystic fibrosis is an important autosomal recessive genetic disease, affecting multiple body systems, with disability and early mortality as very common complications. RESULTS Observed data ...
متن کاملComparative analysis of Cystic Fibrosis Registry data from the UK with USA, France and Australasia.
BACKGROUND Using the UK Cystic Fibrosis Database, we analysed the health of the UK CF paediatric population (UKPP) in terms of their biographical, clinical and infection status and compared outcomes with the US, French and Australasian CF Registries. METHODS UKPP data were collected for 2,673 patients aged less than 18 years in 2001 and used as a reference base for comparison with the most re...
متن کاملCystic fibrosis in Australia, 2009: results from a data registry.
OBJECTIVES To describe the demographics, clinical features and outcomes among people with cystic fibrosis (CF) in Australia and to estimate incidence of the disease. DESIGN AND SETTING Cross-sectional analysis using data from the Australian Cystic Fibrosis Data Registry for 2009. MAIN OUTCOME MEASURES Numbers of diagnoses, pulmonary and anthropometric measurements, microbiological culture r...
متن کاملNon-pulmonary chronic diseases in adults with cystic fibrosis: analysis of data from the Cystic Fibrosis Registry.
The international literature shows that the demography of cystic fibrosis (CF) is changing, with patients increasingly surviving into adulthood. As they age, patients with CF become more susceptible to specific non-pulmonary chronic diseases. In this study, adult data from the CF Registry of Ireland (CFRI) was used to determine the prevalence and associated features of these diseases. 104 (25.7...
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ژورنال
عنوان ژورنال: Journal of Cystic Fibrosis
سال: 2019
ISSN: 1569-1993
DOI: 10.1016/s1569-1993(19)30376-5